Hi
@Louise D,
I'm pleased that my reply was helpful to you and thanks for letting me know that. I took it down because I read through it and thought that it probably wouldn't help you very much, if at all. I do most of my replies in a Word document before posting them, so by default I kept a copy, which I'll repost below (as, although you have kept screen shots, I guess what I wrote might be helpful to someone else suffering from burning mouth as well). There's no need to respond specifically to my reply unless you would like to and it would be helpful to you, but if there's anything you'd like me to comment further on, just let me know. (I have added to what I originally wrote just a little bit, to expand some points.)
Hi
@Louise D ,
Just so you know where I'm coming from, TMS-wise I am still doing 'the work' but I am feeling much better now from doing my own version of 'the work' than I have done for many years. (At one stage, I had periods of being bedridden for many months -- for 7 months on one occasion -- due to severe muscle pain, muscle spasming and fatigue.)
I experienced and was diagnosed with burning mouth syndrome after I had an extraction (bottom jaw, the molar next to the wisdom tooth).
My burning mouth pain was with me for a long time but it eventually went away when I had virtually exhausted all possible medical advice. It finally dissipated after having the extraction site thoroughly inspected by a expert at a major dental hospital in London (I'm a Brit and had to wait my turn on our National Health Service to be seen) and they found physically nothing wrong and after being offered a drug by them that was developed for treating anxiety but apparently had the side effect of helping reduce physical pain to include dental pain. Having tried a couple of similar drugs for my so-called 'fibromyalgia' (with which I had been diagnosed many years before) and finding the side-effects of those drugs intolerable, I declined.
I then resigned myself to suffering the burning mouth pain -- coping with it by using heat packs and over-the-counter (off prescription) painkillers, possibly for the rest of my life -- which was a depressing prospect at first, but then I got to remembering how my other numerous bodily symptoms, often extremely intense, either fizzled out completely or reduced to a tolerable level over time. Anyway, once all the investigations were over with (albeit it I didn't have allergy testing) my burning mouth pain very gradually disappeared and my TMS moved on to paining other parts of my body, the way TMS is more than inclined to do. As far as my brain was concerned it had 'hit the buffers' and there was no mileage left in trying to get my attention by paining my mouth.
I should also mention that the opposing tooth in my upper jaw, fortunately, didn't experience super-eruption, even though it has never had anything to bite against (no denture or implant) since the extraction - I understand that unopposed teeth don't always experience this, it depends on factors, explained to a certain degree on wikipedia
https://en.wikipedia.org/wiki/Overeruption (Overeruption - Wikipedia) (that is if super-eruption is the same thing as over-eruption).
The allergy patch testing and blood test will, as you say, probably be very costly. If you have them and they don't show any sensitivities it could be viewed as a waste of money and time or it could be viewed as money and time well spent... possibly well spent because you will know (with regard to your present circumstances and choices that you need to make) what's what allergy-wise and therefore what's what allergy-wise regarding any more dental work that you might need sometime in the future (albeit I understand that allergies can suddenly develop at any time out of the blue, but I won't tie things up in knots discussing the chances of that possibility).
If you don't have the tests done, if it is TMS causing your burning mouth, your brain may keep on keeping on TMSing by continuing to give you the symptom and possibly increasing the pain after if you have the fillings you need and the partial denture fitted. And, even if you do have the tests and they come back negative for allergies, your brain might still keep on TMSing in that way and may make you question whether there is some other physical reason for your mouth pain. From my personal experience with other TMS symptoms that I've suffered, unless you believe that it is more likely that it's TMS causing your pain or other symptom(s), more than you believe it isn't TMS causing your pain or other symptom(s), the TMS symptom(s) in question are very unfortunately liable to continue (possibly for quite some time, until your brain perhaps decides that it isn't getting the response it wants from you through paining your mouth, and then it may decide to pain you somewhere else instead).
I can't and you wouldn't want me to try and make up your mind for you regarding what you should do, of course... so all I can say is that these days, because I've been through the wringer with a whole myriad of painful and debilitating symptoms over many years that I strove to find a physical explanation for (before and after I'd heard about TMS), I choose to enter into a moderate/average amount of medical investigation into new symptoms and if no physical cause shows up, I consider it to be TMS (and I therefore take the risk that I might be suffering something more unusual or rare that is causing the symptoms).
With dentistry I opt for fillings or crowns that are the least likely out of the options available to me to cause problems/reactions in most people. If dental allergy isn't all that rare, then I'd probably opt for allergy testing before considering my burning mouth to be almost definitely TMS; if dental allergy is pretty rare, then I'd probably skip the allergy testing and risk money on having the dental work done, but I can only speak for what I would do with my history, personal experience and circumstances. (I actually do have two non-TMS rare conditions but they were discovered relatively easily - one was an incidental finding on an MRI scan and the other displayed such symptoms that it couldn't be anything else, although nevertheless I often think that it might be TMS, but as I'm not receiving any treatment for it and just put up with the symptoms, it matters not - because if it's TMS, one day it will just disappear, with the TMS work I'm doing.)
The TMS brain is essentially an angry worry wort and I find that if I concern myself less about what's going on with each symptom when it appears and try and get on with things as much as I can, despite how awful the symptoms are, it can make my TMSing brain 'hit the buffers' and stop giving me that symptom...The anger I'm still working on with increasing success with regard to reducing TMS symptoms. Ideally, you need a quick resolution to your burning mouth so that you can know that it is TMS and put it behind you and get on with the dental treatment you need, but the reality is for most of us who aren't a 'book cure' is that recovery from TMS doesn't happen quickly, so unfortunately it's not easy. I wish you well with your decision making.
P.S. I think the reason you haven't had other replies (not as yet, anyway) from people who are still doing 'the work' is that they may be trying to avoid discussing and thinking about specific symptoms as part of doing 'the work', plus no one can really advise anyone else at what point it is appropriate for them to abandon looking for a physical cause and consider a symptom to be TMS, albeit they can say, of course, as I have done, at what point they personally stopped and about the 'journey'/process they went through that led to that point as that might be of some help. I think another possible reason is that back pain and hip and knee pain, for instance, are more likely to bring people to this forum (indeed Dr Sarno entitled one of his books 'Healing Back Pain') so it may not occur to people that burning mouth could be a mind/body TMS issue, so there will likely be a much smaller pool of people on here who are experiencing or have experienced burning mouth.