Burning/freezing Nerve pain - any succes stories??

[krk_mindbody]

My hands and feet sometimes sweat (an abnomal feeling actually).
Right now it is the sunburning and the feeling of the first layer of my skin has been peeled off which makes it irritating to wear clothes.
My face . especially around the nose is hurting/burning - sometimes around the eye and forehead.. A kind of freezing pain... If I Google it comes back with Trigimenial Neuralgia but it does not really fit the symptoms.

@Megatron, Just to give a little bump to this post. How are you doing now? Any progress with your healing? I am in the same situation as you were. My symptoms started back in May 2022. I have almost same symptoms as you had (using past tense, hoping/wishing you got better by now) except two additional. I got diagnosed with Atypical Trigeminal Neuralgia as I am having constant burning pain in my left check. I also have this dizziness like rocking swaying feeling when walking. The other symptoms are same you had like burning sensation all over the body but mainly in feet. Got many many tests, nothing found. I would like to believe all these are mindbody but not able to come to a radical acceptance.

I have another appointment with my neurologist next week.

I would really appreciate if you could update your situation.

@Dorado, what kind of mind-body work did you do? I am trying but everytime I get these sensations, I am freaked out. Then, it is going back to square. Been two year, suffering with these symptoms.

Thank you
Regards

 

[JanAtheCPA]

I would like to believe all these are mindbody but not able to come to a radical acceptance

everytime I get these sensations, I am freaked out.

Seeking reassurance from others and constantly going back to doctors is not going to change this. Both of those behaviors come directly from your primitive TMS brain. I'm sorry, but you will not see any change or improvement until you start using your rational conscious and mindful brain to take control. It's that simple. Not easy to do of course, but in theory it really is that simple.

You've been here coming up on two years and you're still engaging in these obsessive behaviors. The question is, what are you actively doing about your mindfulness and emotional health? I think that you (under the control of your TMS brain) have been avoiding doing the real work. Go back and read everything in this thread that you started in December and be honest about how much you have actually done amongst the recommendations that were given to you then. For example, did you read the thread about physio psychological dizziness?
That has everything you need to know about how the type of PPD you describe is absolutely 100% TMS, and yet you are bringing it up again in this last post.

Did you make a commitment to a program and complete it? Do you journal consistently and with honesty and vulnerability?

It's time for some tough love. Stop thinking physically, and start thinking psychologically. You know this is the truth. I know you know that. Just do it.

 

[SawyerRhiannon]

How are you now? Any updates on if it was TMS or a true injury to the trigeminal nerve? Im having the exact same symptoms - burning cheeks and constant rocking and swaying.

 

[SawyerRhiannon]

So you had burning in the face and it went away? Was the burning constant?

 

[Diana-M]

Everyone comes on here asking if someone else has their symptoms. It doesn’t matter. If you have TMS, you can literally have any symptom. The subconscious brain can create anything. But the cure is all the same for every symptom and the people who do the work get better. This wiki tells you everything you need to know! Good luck!

 

[ficus]

Hi friends

Could really need a succes story or 2!

I have had a burning pain/sensation all over my body/skin (shifts randomly) for 2 month now.
Sometimes its more a icy feeling.

All tests are normal, MRI, Lumbar Puncture, bloodtest etc..

Cold weather and cold wind can trigger pain sometimes and the skin is sensitive to touch.

Anybody had this and it went away?? (please only write the good news if any)

Info: have had the same sensations 6 years ago but no so intense as now!

BR

Troels

Hello

How are you doing with the nerve pain success? I saw a thread that asked for a success story but I'm not very skilled at using this thread to find that post so thought id ask here. Those with severe nerve pain need stories of full recovery I think - myself included - as when it comes and goes or returns badly it can really emotionally get me down

 

[Alouqua47]

Hello, this thread is very old, but I’ve saved it as well, since I’m always looking for people who have symptoms similar to mine, especially this nervous-type pattern, and for success stories. I’ve saved many links that I can share with you.
Sometimes, when my symptoms get stronger, reading these stories helps me calm down and remember that recovery is possible. It gives me hope. If you’d like, I can share them with you. And please forgive my English; it’s not very good, since it’s not my native language.

Hola

¿Cómo vas con el éxito del dolor nervioso? Vi un hilo que pedía una historia de éxito, pero no soy muy hábil usando este hilo para encontrar la publicación, así que pensé en preguntar aquí. Creo que quienes tienen dolor nervioso severo necesitan historias de recuperación completa, incluyéndome a mí, ya que cuando aparece y desaparece o regresa con mucha intensidad, puede deprimirme emocionalmente.

 

[Alouqua47]

I found the story you mentioned. The person hasn’t been active since 2023, but they basically recovered, because I found the link where they say they were 99% symptom-free and only had a new symptom that basically wasn’t a big deal. Here is the link.
I think many people don’t actually write formal success stories. What happens is that they document their progress in the same post or in the support forums. They come back and comment that they’ve improved, but they don’t end up writing a formal success story. Sometimes I want to believe that those who don’t return to the post simply don’t come back because they truly no longer need


https://www.tmswiki.org/forum/threads/odd-symptom.26078/#post-134911

 

[Alouqua47]

También puedes ver las historias de éxito de Vladan y Dorado. Tenían problemas nerviosos y su filosofía era simplemente vivir la vida sin miedo, sin obsesiones. Uno de ellos solía decir que cuanto menos te importe, mejor.
He visto muchos casos. No sé si funciona para todos, pero básicamente dicen: pierde el miedo y pierdes el síntoma. Todo es causado por el miedo, nada más. El cerebro creó una vía neuronal errónea. Solo tienes que demostrarle constantemente que estás a salvo.
No sé si es necesario llevar un diario, pero quizá sí necesites gestionar tus emociones, porque el miedo se esconde en muchas cosas, como el miedo a no mejorar o la ansiedad constante. No se trata solo del miedo al síntoma en sí, sino del miedo en general, en torno a él.

Este último enlace es de alguien que regresó recientemente al foro. Llevaba 15 años sin sufrir de ardor en todo el cuerpo, pero recayó porque volvió a tener mucho miedo a un nuevo problema de salud, y supongo que la antigua vía neuronal se reactivó. Le hice algunas preguntas y esto fue lo que me respondió.

https://www.tmswiki.org/forum/threads/fearing-tms.33301/#post-169658

Hola

Creo que quienes tienen dolor nervioso severo necesitan historias de recuperación completa, incluyéndome a mí, ya que cuando aparece y desaparece o regresa con mucha intensidad, puede deprimirme emocionalmente.

 

[cly09]

My sensations were showing up all over my body: my face, hands, feet, scalp, stomach, you name it. It seemed like nowhere was safe, not even my neck. That was another “red flag” for my neurologists who suspected the mind-body connection was at play: small fiber neuropathy typically begins as a localized issue (e.g., a specific part of the left foot), it doesn’t involve your entire body very suddenly. And it certainly doesn’t favor your calves for a few hours only to call out your arms later on in the day. I strongly suspect your biopsy results will be coming back negative.

I know the sunburn feeling as well. Do your hands and feet sweat a lot? Do your fingers and toes shrivel up when exposed to water for prolonged periods of time?

Hi, I’ve been reading all the posts on neuropathy symptoms. So are you saying that if your biopsy comes back positive with a lot of loss of nerve fibers, then it can not be TMS? I’m confused because elsewhere on this website it says biopsy results can be positive even in normal people. My neuropathy started in my feet only but now is body wide many years later as a result of inflammation from MCAS…but I also see replies saying MCAS is TMS. So now I am very confused as I have real damage from a condition some consider TMS..