Recent content by LouLou

Thank you. Yes I’ve gone back to his email which always gives me confidence.

Thanks Miffy, your so right in all your advice. It’s really powerful stuff. I’ve been thinking all day about what you’ve written and have been telling myself that food won’t harm me and I’ve had a good day. Thank you.

Hey Annie, I read your story and I’m sorry to hear your troubles. I joined this forum a year ago but only posted my first post a few days ago. It feels really good to let it out and chat to people who know what you’re going through. I have anxiety and have had TMJ issues as well. I’m still...

Thank you Miffy, you’re right, I know I’m a classic case of TMS, I have the personality type, I’m crazy critical of myself and I’m highly emotional. I believe in TMS and have even had Dr Howard Shubnier review my MRI and confirm the TMS diagnosis. If you spoke to me a month ago I would have...

Thank you for the advice. I’m looking forward to the day when wine is safe. It sounds like you’ve done a lot of wonderful work mentally to get where you are. Would it be ok if I PM you?

This is a story. You’re so brave to push past the pain and not react emotionally to it. Can I ask, did you have an MRI to determine your PN?

Thank you Sarah, this is a really big help. There is a lot of doubt and confusion about what is going on with my symptoms and pain. Some days I’m stronger than others but I can only keep trying to keep the fear at bay. I will message you. Thank you for reaching out.

Thanks Miffy, your post gives me confidence. I’m talking to a TMS specialist from the Centre but haven’t had a session for a while. Time to start my sessions again. Thank you again x

Thank you. Yes I’d love to chat more. My urologist ruled out IC a long time ago so I’m in the mindset I don’t have it but I am funny about foods and drinks due to reading about it all those years ago and the experiences I’ve had with pain and my wedding. How do I PM you?

Thanks for your support, I have seen a urologist and had a cystoscopy, which came back normal. She sent me to the pain specialist who diagnosed me with PNE.

Thank you, I’m definitely going to try the screaming into a pillow. Can I ask are you better now? Using TMS as your guide?

Thank you for your comments. I have read a Claire Weeks book but I think it was another one. I’ll look into that one. After I wrote this yesterday, I got out of bed, took some pain killers and pushed through the pain to take my daughters to the beach. I wanted to cry because of the discomfort...

I’m in a world of sadness and fear and being Christmas time is just making me feel worse. I have bladder issues, I’ve been diagnosed with PNE and have been managing symptoms for over 8 years. I’m 38 now and until recently I was the best I’ve been in years. My issues are with food and drink I...