Recent content by ezer

Whatever works. If some modalities help you then the more power to you. In my case, those therapies were useless (In addition I had a terrible allergic reaction to BTX). I did that stuff circa 2004 and stopped for lack of results. But in any case, there is simply no possible correlation...

Yes Syl, PN is definitely TMS. As an ex-moderator on pudendalhope, I can tell you that close to 100% of the people that post on that forum suffered in the past from some form of trauma. I understand your distress regarding intimacy. In regards to this, I recovered 100% and I am sure that you...

Your doctor is uninformed. A psychosomatic syndrome does not mean it is all in your head. It is both in your head and in your body (soma=body). Your psyche influences your body functions. The pain you perceive makes you involuntarily squeeze your muscles -like the obturator internus- in your...

Congratulations Jason and great discussion. I have been pain free for close to 4 years now. In addition for close to a year now, I had no "new symptoms" or "symptoms imperative" manifestations. If only the pudendal ghouls could take notice and not dismiss us as fraudsters.

armyofone: I congratulate you for your success and I am glad that more and more CPPS patients finally come forward. A word of caution: I had more than 100 sessions of physical therapy including approx. 40 sessions with pelvic pain rehab (that you recommend). It didn't do squat for my pain. I...

MicheleRenee, Please do post on that forum! But don't get too frustrated if you get a response in the line of "You did not suffer from PNE then, not like the rest of us". ChrisGR, The Wise-Anderson protocol does not address the root cause of CPPS. Yes PT and relaxation were helpful, but the...

Goshawk, very late at night or right after waking up I did not experience very much pain. Or when I took a hot bath. The pain was not too much a bother during those periods. But yes, I reckon it is challenging.

Great post. It is wonderful to hear more and more stories about CPPS healing. I just wish those awful pudendal fora would take notice.

I believe there is no right or wrong. I see that you really get it. The key is to not think or intellectualize but to simply feel the experience. It is like the tide. The emotion floods, slacks, and ebbs and you just observe. I never watched my breathing but maybe it is helpful. Reichian...

While western medicine is amazing at solving acute issues, chronic pain is another story. CS versus TMS is just her opinion which I think is utter nonsense (believe me, that is not taught in med school). But the sad part is she does not realize the nocebo she is creating for you.

Central sensitization as I understand it, is an "evidence based" explanation of chronic pain. There is no proof of its existence as a pathology. I think all the people that have suffered from chronic pain have been diagnosed or offered an explanation that involved central sensitization. I have...

I was reminded that I had not replied to the NET question. NET initially helped me back in 2012 but I relapsed after a bad and stressful accident a few months later (lost blood, had to drive myself to the ER, couldn't find a surgeon because it was the weekend etc.). Afterward NET was useless...

Ewok2, I know two cases. Those 2 patients were very vocal about it, thanking profusely a PN doctor for having removed the mesh and healed them. They both relapsed after experiencing stress. They never came back on the forum to tell the truth. I am in no way saying that all cases are TMS of...

Forest, "A headache in the pelvis" is dated and inaccurate in my opinion. It attributes pelvic pain to simple anxiety. The cure according to the author is to do a certain type of relaxation (that he teaches at seminars) and physical therapy to treat trigger points. The author does not believe in...

Carbonevo, Good stuff! Yes and Tolle got his ideas from Watts, who himself got inspired by Zen Buddhism. Also if you read Reich, Lowen etc. , the same concepts come up. NicoleB34, please do attend to the physical sensations created by anxiety. Don't ignore it because someone said it is a false...