before i had ever even heard of TMS, it was the "exceptions" that always confused me. Back before pudendal neuralgia struck (started after a medical procedure) I mostly had bladder pain only. I was an avid mountainbiker, and for some reason, my pain would go from doubled over, to nearly gone while riding, then back to terrible after i was off the bike. Also, i rarely had pain upon waking (it would normally kick in about .5-1hr after waking up). That's pretty common with PN, but not with interstitial cystitis. Another time, my dog was in the animal ER and she was nearly dying. i sat for many hours in a hard chair, full of anxiety in my gut, but suddenly realized i had no sitting PN pain, not only that, i had forgotten to take my meds. I always chalked this up to "being distracted", which i guess, is partially true, but i was curious as to why certain activities could be "so" distracting as to clear my pain? Vigorous housework also clears my PN pain, but the moment i lay down to play on my phone, the pain comes back like a tidal wave.
There were the exceptions, and then there were the opposite effects. For instance, most PN patients feel better when laying down, but when i laid down to rest, and play with my phone, the pain would go thru the roof. What was it about that activity that gave me such an increase, that pain meds wouldnt touch it? Deep down when i was playing with my phone, i had this background anxiety and negative feelings, like "you're doing this because you're hopelessly bored. You have no life. Your friends are living life without you. They'll all abandon you, etc"
Now that i know of TMS, it all makes sense.
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Alan has completed the new Pain Recovery Program. To read or share it, use this updated link: https://www.tmswiki.org/forum/painrecovery/Dismiss Notice