gailnyc
Well known member
Today after work I went to see my (regular) doctor. As per everyone's advice here, I went to see my doctor back in January to rule out anything physical. By that time I had been having severe foot pain which prevented me from walking for six months. She had me go for a bone scan and an EMG, both of which were clean. The neurologist told me my nerves were normal and healthy, and there were no small breaks in my bones.
So when I sat down for my follow-up exam today with Dr. Ro (I'll call her), I said to her, "Look, can I be honest? I've been having this thing looked at for six months. No one's found anything. I believe it's psychogenic, that my mind is causing this pain." She looked at me with astonishment. She said, "That's amazing. No one has ever said that to me before." She SEEMED supportive. At first. But then she said she thought it was something called Sympathetic Nerve Dystrophy, and she wanted me to see a specialist and also try a creme called capsaicin. However, she was also supportive when I said I wanted to see a doctor who specializes in treating psychogenic disorders, and she wrote me a referral for Dr. Rashbaum (I have an appt. to see him 3/25).
I have not even Googled Sympathetic Nerve Dystrophy--it sounds too scary, and I don't want to see the symptoms and have my brain start giving them to me! I feel like this is a major bump in the road for me, I have to get past it and continue treating the pain as TMS. But I'm feeling really really low right now.
So when I sat down for my follow-up exam today with Dr. Ro (I'll call her), I said to her, "Look, can I be honest? I've been having this thing looked at for six months. No one's found anything. I believe it's psychogenic, that my mind is causing this pain." She looked at me with astonishment. She said, "That's amazing. No one has ever said that to me before." She SEEMED supportive. At first. But then she said she thought it was something called Sympathetic Nerve Dystrophy, and she wanted me to see a specialist and also try a creme called capsaicin. However, she was also supportive when I said I wanted to see a doctor who specializes in treating psychogenic disorders, and she wrote me a referral for Dr. Rashbaum (I have an appt. to see him 3/25).
I have not even Googled Sympathetic Nerve Dystrophy--it sounds too scary, and I don't want to see the symptoms and have my brain start giving them to me! I feel like this is a major bump in the road for me, I have to get past it and continue treating the pain as TMS. But I'm feeling really really low right now.