Recent content by WantToBelieve

Hi Jennifer! I'm so glad my story encouraged you! I remember scouring the internet and this cite looking for success stories that I could relate to. Feet pain wasn't as common as some of the other pains so glad you found me. Makes sense your pain would move to your feet if you have a history of...

It has been a long time! It’s hard to believe I went through all that! I’m doing great! My feet pain has achieved 100% pain-free most days!! There are very random days where it will pop up but it doesn’t last long. It is interesting though over the years I’ve had a few other mind body things...

I’m so sorry to hear you are in pain. Happy my story could help in any way! Im happy to answer any questions you may have. Stick with it. It can be a wow journey but it’s worth it. I’d say I’m 100% 90% of the time. I still face challenges on a long day of standing but it’s an outlier and I try...

I did beat the Erythromelalgia too!!! Been free of it without one episode for 6 years now!!

I do not feel that sensation when I’m pain-free. The times when the pain does creep in, yes, that is how it feels. I can’t even comprehend how this sensation and the pain has stopped. It’s just remarkable what the brain can do!

As a continued update...since I posted this I remain nearly pain-free. I'm 100% pain-free probably 90% of the time. I still can't believe this is possible. I struggle for over 15 years of my life and I'm only 40! Nearly half my life was spent in pain and now, I'm pain-free most of the time. I...

Hi there...I had Ed and I would recommend him. If you can ever get in touch with Alan, he is INCREDIBLE!!!

Well, I still have some of those symptoms from the implant. I have very little feeling under those last two toes. I developed a huge callous there since all my weight seems to be distributed over this area. And the foot that had the surgery gets tired and crampy a lot faster than the other foot...

I never had the implant removed. I’m too afraid to go through another surgery. Plus the negative impacts are manageable. And I didn’t get worse with each surgery. Just the last surgery where they nicked a sensory nerve and set off the Erythromelalgia condition.

Okay...it was one of Alan Gordan's therapists out of the Pain Psychology Center. Go on his website and it talks about Skype therapy sessions.

So sorry I didn't reply sooner. Things got crazy with the holiday. I'm so glad something I said resonated with you. I'd be happy to PM or talk further if you think it would help. I'm totally blanking on the therapist name/center. Maybe someone on here can help. It's the center in California...

It just felt like how I would imagine my foot would feel if there was no cushion in it and I was asked to stand on concrete barefoot all day long. Best description I've been able to come up with.

No back pain. And I had many MRIs to check for referred pain but they were always clear. And that isn't a crazy question. Often people describe the feeling of a large rock in their show when they have a mortons neuroma so it's a valid description for sure. But in my case, I did not experience that.

Well, luckily for me my pain is basically gone if I can sit down. So I always have that as a saving grace to take my mind off the pain temporarily. Pain meds did nothing to help with my pain. Tried tramadol, Oxycontin (for a day or two), lyrica, even had a prescription for morphine that I never...

Thank everyone! Sometimes it's hard for me to believe that was my life. It went on for 17 years, which is nearly half my life, but it still seems unbelievable that I went through all of that. I still have ups and downs but it's a far cry from crawling around or using a scooter to get through...