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Recent content by stephb

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    My 14 year old son

    Hi Mark, My son said that the biofeedback did help a little bit. When he was in pain his muscles were definitely clutched very tightly and the biofeedback helped him to relax them. Overall, however, I don't feel it provided much long lasting help. He used it twice at the physiotherapist's...
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    New guy with lots of questions

    Well, the new symptoms can still be a version of your brain's temper tantrum. Are any of the symptoms things I talked about that my son experienced? New ideas or worries planted in your head, maybe? Good luck with your TMS doc on Wednesday. Let us know how it goes if you're up to it.
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    New guy with lots of questions

    Ugh, it's too bad financial issues have to get tangled up in the middle of all of this - there is nothing as stressful! I am so grateful that my son doesn't have to worry about money (although he does, he worries about everything). Going through financial issues now, I know how it's impossible...
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    Getting out of comfort zone = Flare - Help!

    Hi, I'm the mom whose son is 70% cured from pelvic pain using TMS. There is a 3 page thread a few threads down where I wrote (a lot - it was therapy for me :)) about my son and his journey with TMS. It was started by mc1986, above. Basically, if he were to push himself like you did to go out...
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    The viciouscycleness of it all & an interesting quote

    My son (14) has TMS, not me, but I can tell you he suffered from anxiety and/or depression since he was bullied at 8 years of age. Even before that he was anxious, I think that's probably why he was a target of bullying - he carried himself with such unsureness, if that makes sense. I don't...
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    New guy with lots of questions

    Hey mc1986, I'm just wondering how you're doing this week?
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    New guy with lots of questions

    Yeah, my son begged for us to either remove his penis, give him a permanent nerve block, or even sever his spinal cord to his lower extremities (he didn't care if he couldn't walk), or kill him. I was trying to find him a doctor who would give him a nerve block without going through our medical...
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    New guy with lots of questions

    Definitely, yes. Biofeedback showed completely relaxed muscles. However, his thighs still hurt to the touch. He was in a downward spiral, asking for a wheelchair, and completely despondent despite the "progress" his physiotherapist was so proud of. He never felt less pain until TMS.
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    New guy with lots of questions

    I haven't checked his trigger points, and I wouldn't anymore since I don't want him to get any ideas in his head about it being physical. But he is much less sensitive over all to any kind of touch or friction. I think the need to understand everything gets in your way. That was my approach...
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    New guy with lots of questions

    Oh my gosh, everything you say sounds so much like TMS. If you don't have it - I don't know who does! I have also started to think that there's no such thing as PN, as well, that it's all TMS. Plus, is a diagnosis of exclusion really a diagnosis? It just means they haven't figured it out...
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    New guy with lots of questions

    Well, its certainly possible you have a million different conditioned responses. When you're in pain all the time, I would imagine everything you do could become a response, because you're thinking and worrying about everything you do! Just to name a few, my son's were - hot weather, cold...
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    New guy with lots of questions

    I was thinking about triggers and conditioned responses and thought I'd mention a few things. My son had major conditioned responses. Since we had tried different diets, etc., he really responded to food - gluten in particular. He was convinced that eating gluten would bring on pain - and it...
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    New guy with lots of questions

    I totally understand about having had a pretty good life. I feel the same way. My son was bullied when he was 8, however, so his life hasn't been as idyllic as mine has. However, my son has had a very stable home life with parents who love each other and are best friends, lots of aunts...
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    New guy with lots of questions

    Also - can you maybe go back on the Clonazepam for a little while? Maybe you just need to get some good Dr. Sarno training in first. Tackle the Clonazepam after you've got a little success under your belt? It's not great, that drug, but if you can improve a bit physically, even if you have...
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    New guy with lots of questions

    Your wife doesn't have to have 100% confidence in TMS, she just has to pretend she does, if you know what I mean. She has to be confident to help you be confident. It won't work if it's half-assed. Somewhere along the line I stopped looking at it as a last resort and started looking at it...
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