Recent content by NicoleB34

hi all, thanks for your replies. Mine is more nerve than muscle, especially really close to the surface, and I too use lidocaine before activities because it's torture otherwise. Yes, i do have some hangups about sex and femininity and getting older, etc., but i also have what's called...

Hello all I haven’t posted for a while because mind-body techniques have made me about 70% better, and I’ve been out living and enjoying my life and doing all the things the doctors told me not to do! This includes riding my bike multiple times a week despite having pudendal neuralgia. My...

your story is very much like mine and many others with pelvic pain. IC is definitely TMS is the majority of cases (i understand there's a rare subset that's autoimmune). Even bladders that have a red lining and ulcers are still initially caused by nerve dysfunction. Some of us genetically...

So i just came back to say, i believe i found the culprit. Turns out, carbonated drinks like seltzer (i only drink calorie free, no soda) can actually ramp up the hunger hormone. Sounds like it should be the opposite, but the C02 is what stimulates the hormone. i had been drinking multiple...

I should also point out, many doctors havent even heard of PN, let alone know how to treat it. I'm only lucky to have a diagnosis because i live in an area where there are top experts in the condition. Keep in mind, they're starting to lump all these pelvic pain syndromes under the umbrella of...

Have you tried the TENS unit? if placed right, the electrode takes nearly all the pain away for me. it works best for rectal pain (but you have to put one of the pads inside the buttcrack, usually right next to the anus, and make sure to remove hair!) because the rectal branch is pretty close...

Sadly the supplements didnt help me and i'm one of those small percentage of people who sometimes get revved up from valaerian. I know most of my sleep issues are psychosomatic so i'm trying to learn natural ways to wind myself down. thanks yall.

the timing is great because i'm not in a horrible PGAD flare mixed with pain, and i suspect it was caused by a stressful event at work. I do sometimes struggle taking my own advice when i'm in serious pain. Right now, the thing that honestly saves me when i'm having a horrible flare that meds...

i've had this, it's the worst symptom i've ever felt. It was like a mix of arousal and throbbing electricity. it's one of the hardest pains to have and not freak out. first off, dont panic because you'll feed the pain. I know, easier said than done. When i flare these days, i dont analyze...

the book "the great pain deception" by Steve Ozanich was the most helpful book for me. I think it goes a little extreme in some cases (like saying cancer can be triggered and fixed with emotions) but he's an example of doing the opposite things that he should have, based on his grim...

Hey there, you may end up having a doctor tell you it's Pudendal Neuralgia. I have it too, but it shifts from the rectal to genital/urinary region. I only mention PN so that you dont waste your time on invasive hemorrhoid treatments or anything like that or take unnecessary antibiotics. PN is...

I had my symptoms subside when fighting a bout of shingles. it was like my body/brain only wanted (or needed) to focus on the bigger problem. For as terrible as shingles was, it was almost nice to have a break from my other pain!

this was one of the first things that made me realize my pain wasnt structural. I have this story i like to tell where i was in a horrific flare for 2 months. i was led to believe a "trigger point" in my muscle was causing it. Well, one day i had a romantic tiff that left me really emotional...

ok, let me get a few things out of the way before you ask. i'm not pregnant, no diabetes, thyroid is fine, basically i had blood tests this year and everything is A+. No excessive thirst. So a handful of days this month, today being the absolute worst, i've had extreme hunger that cant be...