Recent content by Ashley A

I had wondered if being off of medicine would impact a flare-up. My thoughts were yes, even though I was on such a low dose it was still something that my body was used to so that’s a big shift for my body and I’m sure lots of feelings about it buried in my subconscious as well. This flare-up...

Thank you! I like how you write, “your brain will comply.” I’m going to turn that into an affirmation - my brain will comply. It’s just a matter of time with patience, determination, repetition, compassion, that my brain will get the message. I’m thinking about getting a coach, as I struggle...

Thank you for your words of inspiration!!! I never get tired of hearing that people get better - definitely reignites my hope. Confidence and faith - I will remember that! I feel like I have a decent amount of patience - I’ve been at this work for many years now. But I do lack confidence and a...

Thanks for taking the time to reply! Means a lot to me:) The holidays have definitely had their impact on my symptoms that’s for sure! It’s a mixed bag for me because I used to love the holidays and now I mostly dread them. Everyone that has replied to my thread seems to be on the same page...

Co-dependency is a huge issue for me. I’d go as far as to say everyone in my family is a co-dependent of one another. I feel like I will take note sometimes that I’m not considering my needs first but then I feel guilty and slip back into that co-dependency so easily. And it does make me angry...

Sorry about the delay on my reply, hadn’t realized so much time had passed. Thank you for taking the time to reply. I have been trying to get more in touch with my anger and the reasons for it. It is the emotion I most often bypass. I think it’s the emotion I feel the least comfortable with...

I’m still trekking along. Thank you for your words of encouragement, they really do help :) I feel like maybe I’ve had a very slight decline in symptoms so I’m trying to hang onto that hope.

I’m writing this out of desperation. I feel so hopeless and like my life is over and I’m only 38. This has been going on for 4 years (I know that’s not a lot for many of you) and most recently have been experiencing a really bad 5 week flare-up. This flare-up is extra painful with way more pain...

It can definitely be exhausting, that’s for sure! Like you said, just the daily ups and downs. Even if pains at a minimum it’s a lot. Mentally exhausting too. I like your thought on mindset. I definitely need to look closer at mine. Yes and no that pain free days for me meant lack of pain days...

Hi Fred! I’m so sorry that you too are still struggling. It can be quite a long road. I did really experience quite a lot of relief in 2019. Unfortunately 2020 brought a lot of trauma back into my life. Obviously the pandemic, which greatly effected my husband’s job but also in many areas of...

Good insights on the family in case EmMQ. For me it’s not family, it’s actually a trip with dear friends. But like you mentioned, my flare-up has been going on for 3 weeks already and I know the exact trigger (it was somewhat traumatic and quite difficult information that I learned) and then the...

I am bracing for what it will be like. I haven’t traveled in over two years because of the pandemic. Flare-up aside, it just feels like it will be an assault on the senses. The first time I was on the NYC subway after being in quarantine for so long was quite jarring. I expect the airport around...

You are spot on with the FEAR. I capitalized it because it is a big theme for me and one I struggle with a lot. I will definitely check out Alan’s program. I did decide late last night that I would just go (feeling really unsure still) but then turned a corner today. While there is still fear...

I understand deeply what it feels like to have lost so much already. My thoughts are with you!