Testicle & CPPS/Prostatitis Dilemma :(

Hi friends!


First post ever & will continue to update.

I’ll try not to make this super long. I will inevitably lol!

Essentially I have a massive history of TMS. But I only discovered TMS last year and when I suffered from really bad low back pain. If it wasn’t for some random reddit comment “check out Dr.Sarno” I would have never had the crazy discovery or reason for alot of what I had been through. It’s been a lot of medical debt & stress & tears over the years. Headaches that lasted weeks, Insomnia that I swore was gonna put me down lol, Stomach pain, Back pain, eye strain pain, sinus pain! I’m also plagued with health anxiety. But I do have windows of time where things do feel okay. I eventually got out of 7 months of pain from my back when I addressed my pain caused from my parents. I miraculously had a very crazy release and felt the pain finally start to let up. I was at a point where I couldn’t sit, stand still, barely sleep. It was one of the craziest moments of my life and truly made me a believer in TMS. The pain eventually went away once I knew it wasn’t real.

No TMS since…

However in the last 30 days I developed prostatitis pain/ testicle/ pelvic pain. This isn’t my first time with this pain either. However it’s on my left side now which is new to me. I had this on my right side 10 years ago for like a year. I was so used to it. I would rather it be on my right haha.


Never the less really stressful time in my life right now. But was managing.

It happened after a day of ejaculation a few times. Went to bed late one night after sex with my partner and woke up to take my son to school. I want to mention I have had no accidents or injuries take place. This simply just started out of the blue.

When I was driving I felt a discomfort in my left testicle. Didn’t think anything of it at the time. But after a few hours to a few days I completely started to worry as it wasn’t going away. Before you know it I was locked in. Started panicking. Googling! Terrible move!

*Symptoms:

Testical/groin discomfort

Hip pain

Random leg pain

Sore left glute

Hip flexor tightness

Left side tailbone tightness/pain

Split stream urine sometimes.

Perineum tightness when ejaculation (when this started not so much anymore)

Rectum sensations.


Then it started radiating to my left hip, front of thigh, outside of my left leg. Left side of my back. In my glute. It’s not an excruciating pain but it’s enough to get my attention and bother me.

Had enough and went to the ER for some clarity. They did a urinalysis and it came back clean. They also did an ultrasound on my scrotum/testicals. They were also fine. However I’ve had two epididymitis cysts my whole life which I told them about and they saw them. They also found a small varicocele (fairly common) on my left side which I did not know about. I had researched prior and knew the left side felt a little different but wasn’t sure.


I want to mention my testicals themselves are not painful to the touch at all which is crazy to me. It was then that my mind made up that this (varicocele) has to be the source of my pain. I’ve thought since that it could be my hip caused by a labral tear. Maybe my low back is actually doing this potentially hitting a nerve. Possible PN?! Hernia, Colon?!

The ER physician wasn’t concerned in the least and sent me on my way.

The radiologist didn’t even mention the varicocele in the final findings report cuz it was so small (2.5mm). I had to literally ask about them as the tech mentioned them but the Doc did not. The worst part of all this is I won’t have insurance until January 1st. So the feeling of being financially stuck really adds to this. I do have an appointment with a Urologist on June 30 but that’s about it currently.

I’m exhausted.


But I want to say that through pushing through fear. I did a CrossFit workout on Memorial Day. It was a mile run, 100 pull-ups, 200 pushups, 300 air squats, and another mile run. Literally experienced zero pain or discomfort during it. I couldn’t believe it. That’s when I started to suspect. It seems like movement is best for lessening my symptoms but sitting or standing still isn’t. But laying down is fine I can’t make it make sense.

Also when I lay down at night I sleep like a baby. I can get up and pee and come back to bed no problem and get into a comfortable position and go back to bed.

But when I awake in the morning and my body is laying waking up even if I haven’t gotten up. The pain starts to come back.

Very strange.

They do say that laying down relieves pain associated with a varicocele but gosh this can be applied to literally anything causing pain and finding relief laying down. I do not have to elevate my feet at all. Also even if I wanted to pursue fixing it there’s no guarantee it makes the pain go away. Especially with it being so small a doctor may not even touch it.


Lastly I went against conventional wisdom yesterday and I masturbated and it alleviated my symptoms greatly for like 30 mins. Went to the driving range to hit some golf balls…. Zero pain doing this activity. Not until I was in my car driving home. Sitting seems to be a big trigger as this is how it started.


But now I’m rambling and I’m sure I’ve missed something. But I’m trying hard to buy in again that this is TMS. I like many of you, pain triggers my anxiety. It’s hard to come back down when pain is trying to take all your focus.

I have moments where I’m okay but as you know it’s a constant effort to just let it be.


Hopefully I find some of you with similar wisdom. I’ve searched savagely for stories with some same issues and have found some even with success. But I wanted to make my own.


Thank you friends.

 

You have a history of TMS, you have new symptoms which you got checked out, and it sounds like there wasn’t much obvious that could be attributed to your pain. You have nothing to lose by applying a mind body approach to this.

I had chronic scrotal pain from a vasectomy 90% resolved with mind body approach and I’m confident I’ll get 100% of the way. Prior to the vasectomy I had suspected pudendal neuralgia, turned out to be TMS, thankfully it went away on its own.

 

Thank you so much Rabs! Really appreciate your input here.
I’m so happy you found a way out! About how long did it take you to get to 90%? The whole process of pain reprocessing is truly fascinating.

 

Well I’m deep in the symptom imperative, so I just want to be transparent. But the scrotal pain which had me in full on panic and catastrophizing and ruling my life, overcoming that took 2ish months.

 

As an update it’s kinda wild.
I recently just got sick with a really bad sore throat. Terrible to swallow.
Which completely took the primary focus of pain.
With that my pelvic & testical pain completely went away during this time (2 days) . I could sit down & feel nothing for extended periods of time. I felt normal.
In some way it was the proof I needed.
But now that my throat is starting to calm down my brain is checking back in on my pelvic discomfort. Which is rearing its head.
My mindset is too stay the course & just do the work.

 

THIS!! The same thing happened to me. This weekend I dealt with some debilitating back pain and I broke down and took a ibuprophen. Within 5 mins the back pain was completely gone (meds don't work that fast!) and then I had a symptom imperative pop up instead! It is wild.

So you are on the right track. Give yourself patience and be kind to yourself as you go through the program! It's commitment and work but so worth it!

 

Remember these moments. Keep them on your mind or in an evidence journal. This is a huge victory.

 

Every time I think about this, it occurs to me just how powerful our minds are.
In so many ways, this is such great news since it becomes clearer and clearer that the mind can truly do remarkable things
Thanks for sharing your experiences!

 

It really is! I knew this would most likely happen once my throat got better with my existing problem creeping back in. I was anticipating it because i just felt that it wouldn’t let me off that easy. I wasn’t gonna get that lucky. lol
But now I know atleast. I just don’t believe that a scratchy throat would take over something more concerning. But it did. Woe unto me
But we’re back in the trenches a little lol

 

I have everything you described, cyst on left testicle. Had it for years. Also left sided varicocele, can certainly feel it so probably larger than yours. I also have visible varicose veins on both legs, across my left knee and calve and down my right thigh.

Before I got my recent symptoms (head tingling, burning etc) I have dizziness for a load of months and then my back flared up very badly. Prior to my back flare up I was dealing with a stiff back for months and then I would get a strain that ran vertically in one glute and then it would go to the other glute after a few weeks (playing football would trigger it - had only starting playing again).

The week prior to my back flare up I got a burning in my left hip that lasted like 4 days and then the flare up came. I have super tight hips and groin from lack of exercise/gaming/poor posture for a decade atleast. Basically everything you described I also have or have experienced.

Ive also experienced a sensation of almost like my shorts/trousers being too tight or caught on my scrotum, almost feels like a rash at times. I actually recently got this again last week, it's went away which is good. But yea I get testicle pains and sensations which come and go. So I'm right there with you.

I am also still experiencing my head symptoms. My back threatened to flair up during the week but I said to myself I don't care, I'm still going to do my football training later that day ( in the past id have over thought it and most likely have pulled out of going/ over thought/ panicked that I wouldn't be good enough) but now having thought I was going to die from these recent symptoms I'm not allowing fear to stop me doing things I enjoy or things that will improve my life. So I'm glad you found that pushing through the fear worked! Keep going and don't stop.

I've came to the realization that I'll die some day (this was a fear of mine) but until then I'm living my fucking life, and doing all the things I feared or worried I wouldn't be perfect at! Maybe you can relate to me, maybe not but don't allow fear to stop you, no matter how shit you feel sometimes.

This was probably all over the place but I wanted to comment as I basically have everything you mentioned.. hope you're doing well.

 

Hey, @Jstorm87
Here’s the disappointing truth. TMS usually comes back. You’ll probably fight it off your whole life. But you will get better and faster at it. When it does come back—like it has now— it will usually require more work than last time. You’ll have to dig deeper into your history and your life. Until you get to the bottom of your issues, your TMS will linger. I’d ask yourself, first thing, what’s going on in your life right now that your TMS brain wants you to not look at? Start with all your closest relationships.