Vulvodynia vestibulitis /PGAD/PN please help

Hello- this is my story and current situation. July 2 2019 was the beginning of my nightmare. I woke up that morning to what I thought was a yeast infection. I was in urgent care by noon having cultures taken and STD testing. Everything was negative and normal flora. Symptoms started to escalate and the burning got worse and pain moved toward my clitoris and buttocks. I have gone to many gyno's and doctors whom don't know how to help me. Currently I'm managing with opioids and compounded meds which are making things worse. I have no life, I lost my job and I'm 27 years old having to live on disability and move in with my mom. At this point I have full blown PGAD, PN symptoms (electrical shocks and internal hot poker burning) and tailbone pain. My bladder is fluttering constantly and it hurts to urinate at times. A very well known Urogyno diagnosed me with Left sided PN and Vulvodynia form possible sports injury. I was referred to pelvic floor therapy. I found the best of the best in my area, where I am currently going now. I have had two sessions and already developed an infection. IDK how but of course I have struggled with chronic infections my whole life. My story has a weird factor. My mother has the same thing I have. She got diagnosed 4 years ago. She has lost her life and struggles ever since. I find it crazy that I have someone that understands exactly what I'm going through, however; I don't want to be like this and 4 years from now. limited completely at life and miserable. I need help and reassurance that this can go away. I can't accept that the doctors think this is a sport injury. Right before this happened a week prior I had been going through what you would call a quarter life crisis. I remember thinking back in June how I was a little manic and stressed about life and time. Then July 2nd I woke up with this. Please someone tell me this could be TMS. My symptoms are so real and painful its hard to grasp the fact that this is self inflicted by TMS. Could it be that my Pudendal nerve is being agitated causing PGAD and XYZ from Hypertension of pelvic floor muscles from TMS? Can this self induced Hypertension be capable of crushing the PN like that? My question I guess really is- Can this really all go away completely where I don't even have to hinder my life? Is that really possible through the TMS approach if this is a TMS issue? I went from waking up at 5 am running before work, being the top surgical tech to completely bed ridden. Please tell me someone out there has gone through this and is past it completley.

 

Lots of people here have been through a multitude of pelvic symptoms, and have recovered. While you are waiting for specific responses, you (and your mother) need to learn about the TMS mechanism by reading one of Dr. John Sarno's books - I recommend The Divided Mind, his last book, with six chapters written by other health professionals, although The Mind Body Prescription is another good one, covering many different conditions. His books are available everywhere - I downloaded my first copy as an e-book from my public library.

There are lots of threads about pelvic symptoms in our Success Stories subforum. Here are some to get you started, starting with ezer's story, the one that many people still refer to:
https://www.tmswiki.org/forum/threads/pelvic-pain-healed.8680/ (Pelvic Pain - Healed)
https://www.tmswiki.org/forum/threads/pelvic-pain-fibroymalgia-etc-recovery-story.20812/ (Pelvic pain, fibroymalgia, etc recovery story)
https://www.tmswiki.org/forum/threads/pelvic-pain-healed.20441/ (Pelvic Pain, Healed!)
https://www.tmswiki.org/forum/threads/pelvic-pudendal-low-back-pain-recognize-it-for-what-it-is.10908/ (Pelvic, Pudendal, Low Back Pain. Recognize it for what it is.)

 

Read my story,hope it can help you i had all that and add 50 times more.

 

Hi,

I have had all the symptoms you described (for 10 years) and many other TMS symptoms. At one point I couldn't walk for 3 years but I healed using a TMS approach.

I know how awful vulvodynia is but this doesn't have to ruin your life. There is hope for recovery!

Please feel free to ask any questions here or send a direct message to my inbox.

Best wishes,
Kathryn